I’ve been in the „living group” in Hessen for a good three weeks now.
Such a move and “inventory through the own life” is without MSA already exhausting and stressful. … >>>>>>>
Our daily life with Multi System Atrophy
I’ve been in the „living group” in Hessen for a good three weeks now.
Such a move and “inventory through the own life” is without MSA already exhausting and stressful. … >>>>>>>
I have been living in isolation for quite some time now, but I must honestly say that this does not affect me that much. I’m going out 10% less than … >>>>>>>
Eventful days lie behind me and I almost managed to stay on the ground for 7 days. Unfortunately it did not work out. But in contrast to the last but … >>>>>>>
Trappen in endless slow motion…
…that’s what I feel like now. Especially this morning when I was spooning my breakfast egg and it took forever for the spoon to work … >>>>>>>
Dinner for one up Kölsch is currently on TV! I am sitting in my armchair and think about whether I should take another IBU or whether it has to be … >>>>>>>
Everyday life at home has me again and I am busy with the usual things like PT, OT, speech therapy, psychologist… First I try to get out of jet lag, … >>>>>>>
I am now more than a week in Canada and try to see and experience as much as I can.
The first week I enjoyed at home from my cousin, … >>>>>>>
The strange thing about this disease is that it can cause anything. If I have something, I will automatically blame the disease. What you think? Dry scalp or ingrown toenails? … >>>>>>>
Many things we learn to appreciate only after we have lost them. This is very human. MSA patients know, what it feels like, we are constantly losing abilities we used … >>>>>>>
I woke up like every day. It’s clear to me that I need a little time to reach my “operating temperature”. Then I realized: Coffee is out…
The heat was … >>>>>>>