I’ve been writing this post forever. By the time you read it, I most likely won’t be around. I am publishing this post with timing. Yes, it is a concern … >>>>>>>
The last decision
Tabula Rasa
It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>
Journey
Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>
When words fail
I found out this morning that Marion has passed away. I know that she is now redeemed, but I am sad and stunned. It happened so fast…
She was my … >>>>>>>
This demand for happiness and gratitude is annoying
Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>
How are you?
Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with … >>>>>>>
About breathing
Lately I have noticed a change – among others – in myself. In the evening, when I lie on the couch, I have unusual breathing. I have to take deep … >>>>>>>
What does MSA mean for (care) relatives?
(Guest article from Silvia)
In 2017, my husband had the first symptoms – slight balance problems and speech was sometimes a little slurred. At that time he was still … >>>>>>>
Do what is possible
For about two weeks now lives the sports group. That’s me, and a handful of participants from our online group. We do one hour of sports every day, each as … >>>>>>>
Dentist visit
I recently had a visit to the dentist. It is never a pleasure and as the disease progresses it becomes more and more difficult.
My dentist had MSA in the … >>>>>>>