How are you?

Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with that. Often I answer the question with a general “As always”. But often the question is not meant superficially at … >>>>>>>

About breathing

Lately I have noticed a change – among others – in myself. In the evening, when I lie on the couch, I have unusual breathing. I have to take deep breaths more often, it’s like I’m bubbling. As if I needed more air. I have been observing it for a … >>>>>>>

Do what is possible

For about two weeks now lives the sports group. That’s me, and a handful of participants from our online group. We do one hour of sports every day, each as much as possible and does one good. After seven weeks, we evaluate the data and see whether it has brought … >>>>>>>

Dentist visit

I recently had a visit to the dentist. It is never a pleasure and as the disease progresses it becomes more and more difficult.

My dentist had MSA in the family, so he knows what to look out for.

Regular visits to the dentist are important for all of us. … >>>>>>>

Everything slows down

I took a look at how many posts we wrote a month in the beginning, and how many now… It’s getting less. Writing a post is becoming more and more time consuming, difficult and tedious. Meanwhile writing a post takes forever. I make many more mistakes when writing, which I … >>>>>>>

Therapy

Many greetings from Biskirchen from the Gertrudisklinik! I have been here since Monday and will stay for three weeks in total.So over the holidays, but because I’m not necessarily the Christmas person, that’s OK – besides, it is here rich and elaborately decorated for Christmas. But it will be nice … >>>>>>>

A man goes when he wants to go

Our paths crossed for a sad reason. And we spent too little time together.

You always had a kind word for all of us. For that I am now a little wordless.

Through you we learned how it is to go when one likes to go.

You broke the ice … >>>>>>>

In times like these

This report comes from my brain, adapted from the report of Dr. Lawrence I. Golbe, eminent clinician, head of the science department at CurePSP, USA.

Grade is a non plus ultra topic and vaccinating or not vaccinating is dividing the nation. I know I am not making friends with my … >>>>>>>