Our daily life with Multi System Atrophy
(Guest article from Silvia)
In 2017, my husband had the first symptoms – slight balance problems and speech was sometimes a little slurred. At that time he was still very sporty, hiking in the mountains, cycling with friends and riding his motorcycle were his hobbies. Then came the first … >>>>>>>
So, I’m almost done here. All in all, I can say that the whole thing has not really brought me anything. If, then so much that I speak here more, get up earlier and eat regularly. Because of the pandemic, some activities were cancelled, such as swimming and singing. I … >>>>>>>
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not know, what comes from the disease and what not. But it is a little bit like our body is a … >>>>>>>
Actually, we all have our problems and fears with this. To understand all this a little better, I have looked around. My information is based on American sources, so it may not be complete. Please feel free to make additions / corrections. The information is based on the pages of … >>>>>>>
For a long time I have been thinking about what is wrong with me. People in general credit me with much more than I can perform. At the beginning of my illness, even before my diagnosis, I often thought I was simply listless and lazy. As if my butt and … >>>>>>>
I often read that MSA can have autonomic, cerebellar, pyramidal and extrapyramidal symptoms. It’s time for me to get into these pyramidal things, I didn’t know about them before and the topic was always too scientific for me. But I stumble over again and again to ignore it. As … >>>>>>>
Sometimes I ask myself what is wrong with me. Sometimes I have something and I don’t understand what it is. I also often don’t know if it has something to do with my basic disease, MSA. What I do know is that this is a disease of the brain, and … >>>>>>>
There are research studies that suggest that stress has a negative influence on neurological diseases. Stress increases damage to dopamine cells, which in turn leads to more severe symptoms. Acute stress most likely worsens motor symptoms, which include bradykinesia, freezing and trembling.
What is stress; it is emotional or physical … >>>>>>>
Probable, possible or safe MSA and how do I donate my brain?
Yeah, what now? Do I have MSA or not?
Probably most people ask themselves that when they hold their doctor’s letter in their hands.
On the letter, under Diagnosis, the words: probable or possible MSA are often written.… >>>>>>>