Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our family is out of joint, but whereas we let sadness show through! We are fighters and grateful for every fart. … >>>>>>>
It would take a few days to realize. Out of the dream…
A few days ago came the press release from Biohaven itself that the drug is unfortunately ineffective. I was a bit surprised about the timing, we in Europe are a bit behind. However, I was not surprised by … >>>>>>>
Somewhere in the parental cellar it still be, my first recording, where I
sang full of fervor. 2 Little Italians was one of my favorites
I was 3. and this is probably my first memory.
I learned to speak in Kuwait. My first words were bilingual
” Yallah ” I … >>>>>>>
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball cap. I always go into nature, where there is less going on, and not in the city. I prefer to … >>>>>>>
This is a topic that is rarely talked about, at this point as a warning to all, if you want to read on – it is about one’s own death and it is about active euthanasia.
There are many people who reject such a thing. If you have a partner, … >>>>>>>
The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me and MSA excuse.
And so I sit in front of the watch the EM final Italy against England.
And, no … >>>>>>>
I am making preparations. I’m going to Bavaria tomorrow and I’m very happy. I was never homesick, for example when I left my birthplace, but I am now. Although I can say that I already have quite good here in Hessen, I have met some great people. And some strange … >>>>>>>
I sometimes get scared when I walk by a mirror. Is it me or is it someone else? I am so completely a different person than I used to be. People who used to know me probably wouldn’t even recognize me. Just because of the cut off gray hair and … >>>>>>>
I remember how much hope we had in the Biohaven study.
Now we are almost 2 months away from the end of the official phase. And the question arises:
What happens next?
What are the possibilities?
There is the “Australian” Alerity with ATH 434, but they are only starting with … >>>>>>>
I ask myself again and again the question whether one can accept this condition ever. Through conversations, the topic now comes up again. Others say, they have the effort to accept the disease to be able to close, to live on. One also takes help from psychologists, social workers or … >>>>>>>