I’ve been writing this post forever. By the time you read it, I most likely won’t be around. I am publishing this post with timing. Yes, it is a concern … >>>>>>>
The last decision
Tabula Rasa
It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>
Journey
Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>
Between hope, anger and despair
My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>
This demand for happiness and gratitude is annoying
Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>
The final result
It would take a few days to realize. Out of the dream…
A few days ago came the press release from Biohaven itself that the drug is unfortunately ineffective. I … >>>>>>>
The long farewell to my voice and the stadium
Somewhere in the parental cellar it still be, my first recording, where I
sang full of fervor. 2 Little Italians was one of my favorites
I was 3. and this … >>>>>>>
MSA does not make me a better person, or rather, how this disease exhausts my mind
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>
My way
This is a topic that is rarely talked about, at this point as a warning to all, if you want to read on – it is about one’s own death … >>>>>>>
Oh well, it’s just always something or Colonel Hati
The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me … >>>>>>>