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Tag: Psyche

Posted on 18. January 202316. January 2023 by Marta

The last decision

I’ve been writing this post forever. By the time you read it, I most likely won’t be around. I am publishing this post with timing. Yes, it is a concern … >>>>>>>

Posted on 16. December 202216. January 2023 by Marta

Tabula Rasa

It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>

Posted on 21. October 202230. October 2022 by Marta

Journey

Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>

Posted on 18. October 2022 by Silvia

Between hope, anger and despair

My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>

Posted on 27. April 2022 by Marta

This demand for happiness and gratitude is annoying

Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>

Posted on 17. October 2021 by Marta

The final result

It would take a few days to realize. Out of the dream…
A few days ago came the press release from Biohaven itself that the drug is unfortunately ineffective. I … >>>>>>>

Posted on 25. September 202125. September 2021 by Marion

The long farewell to my voice and the stadium

Somewhere in the parental cellar it still be, my first recording, where I
sang full of fervor. 2 Little Italians was one of my favorites
I was 3. and this … >>>>>>>

Posted on 16. September 2021 by Marta

MSA does not make me a better person, or rather, how this disease exhausts my mind

I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>

Posted on 13. August 202113. August 2021 by Marta

My way

This is a topic that is rarely talked about, at this point as a warning to all, if you want to read on – it is about one’s own death … >>>>>>>

Posted on 12. July 2021 by Marion

Oh well, it’s just always something or Colonel Hati

 

The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me … >>>>>>>

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Kenneichen aG im Schwerbehindertenausweis für Atypische Parkinsonsyndrome

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Young Alliance Against Multiple System Atrophy (YAMSA) e.V.

Recent Posts

  • Pain in people with multiple system atrophy (MSA) – a web-based survey 16. February 2023
  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022

Recent Comments

  • Kevin on The last decision
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    • Life despite MSA – E Cannonball E Autorallye
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    • The long farewell to my voice and the stadium
    • My sister not my nurse
    • Oh well, it’s just always something or Colonel Hati
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    • The last decision
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    • Journey
  • 1 Nicola
    • Impressions of a vacation at the foot of the Olympus Mountains
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    • Pain in people with multiple system atrophy (MSA) – a web-based survey
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Top Beiträge

Was bedeutet MSA für (pflegende) Angehörige?
Wenn die Worte fehlen
Schmerz bei Menschen mit MSA, Studie von Prof Wenning, Innsbruck
Die letzte Entscheidung
Gehirnspende: Ein Geschenk für die Zukunft oder wohin mit meinem Gehirn wenn ich ihn nicht mehr brauche
Diese Forderung nach Glück und Dankbarkeit nervt
Pain in people with multiple system atrophy (MSA) – a web-based survey
Reise, Reise
Was passiert bei Dysautonomie überhaupt und bin ich betroffen?
Über Atmung
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