What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA sufferer feels. We are too different.
In any case, I feel primarily like someone who is very-very drunk. For almost … >>>>>>>
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball cap. I always go into nature, where there is less going on, and not in the city. I prefer to … >>>>>>>
The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me and MSA excuse.
And so I sit in front of the watch the EM final Italy against England.
And, no … >>>>>>>
When I move, I remind myself of a baby. I walk, stagger, like a toddler who has just learned to walk. When I move my hand, I am imprecise, I hamper myself. Quite often I overshoot the target, so if I want to scratch my nose, I may give myself … >>>>>>>
I am making preparations. I’m going to Bavaria tomorrow and I’m very happy. I was never homesick, for example when I left my birthplace, but I am now. Although I can say that I already have quite good here in Hessen, I have met some great people. And some strange … >>>>>>>
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not know, what comes from the disease and what not. But it is a little bit like our body is a … >>>>>>>
Sorry, I haven’t been in touch for a while, I had a physical and mental slump, which culminated in the first week of my 30-day rehab in Loipl / Bishofswiesen. One or the other may now ask how I ever came to Loipl. I had the following priorities in, exactly … >>>>>>>
Each one of us has his/her horror symptom. Mine is antecollis. And I am sure I am not alone. For that reason, I want to know how it comes about and what I can do about it.
Antecollis is the term used to describe excessive forward flexion of the neck … >>>>>>>
Today is a day on which I would have gone jogging under normal circumstances. I remember the paths in the forest, where I jumped over tree trunks, puddles and slugs, the smell of moss and leaves, deer that I sometimes met and which then shyly sought the distance. The branches … >>>>>>>
Actually, we all have our problems and fears with this. To understand all this a little better, I have looked around. My information is based on American sources, so it may not be complete. Please feel free to make additions / corrections. The information is based on the pages of … >>>>>>>