It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>
Tabula Rasa
About breathing
Lately I have noticed a change – among others – in myself. In the evening, when I lie on the couch, I have unusual breathing. I have to take deep … >>>>>>>
Everything slows down
I took a look at how many posts we wrote a month in the beginning, and how many now… It’s getting less. Writing a post is becoming more and more … >>>>>>>
The ease of being (or the difficulty of being?)
What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA … >>>>>>>
MSA does not make me a better person, or rather, how this disease exhausts my mind
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>
Oh well, it’s just always something or Colonel Hati
The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me … >>>>>>>
Like a baby only not so cute
When I move, I remind myself of a baby. I walk, stagger, like a toddler who has just learned to walk. When I move my hand, I am imprecise, I … >>>>>>>
Travel plans
I am making preparations. I’m going to Bavaria tomorrow and I’m very happy. I was never homesick, for example when I left my birthplace, but I am now. Although I … >>>>>>>
About Dysautonomia
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not … >>>>>>>
In search of the good feel moments. Or my rehab this year
Sorry, I haven’t been in touch for a while, I had a physical and mental slump, which culminated in the first week of my 30-day rehab in Loipl / Bishofswiesen. … >>>>>>>