My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>
Between hope, anger and despair
How are you?
Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with … >>>>>>>
What does MSA mean for (care) relatives?
(Guest article from Silvia)
In 2017, my husband had the first symptoms – slight balance problems and speech was sometimes a little slurred. At that time he was still … >>>>>>>
What does science know about myoclonus?
Actually, we all have our problems and fears with this. To understand all this a little better, I have looked around. My information is based on American sources, so it … >>>>>>>
Bad energy, exhaustion or fatigue?
For a long time I have been thinking about what is wrong with me. People in general credit me with much more than I can perform. At the beginning of … >>>>>>>
Medicine for everybody
I often read that MSA can have autonomic, cerebellar, pyramidal and extrapyramidal symptoms. It’s time for me to get into these pyramidal things, I didn’t know about them before … >>>>>>>