It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>
Tabula Rasa
Journey
Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>
Life despite MSA – E Cannonball E Autorallye
Before the illness, we had great fun in classic car rallies. Kim was a great co-driver in these, and teasing sports cars with twice as much power (and 10 times … >>>>>>>
MSA, body care, vanity and things like that…
I’ve been thinking these days, enough is enough, I need to shave my legs. I know that with MSA you have bigger problems than that. But I must say that … >>>>>>>
Emergency room
The day before yesterday was the day. First time in the emergency room. Urinary retention. I guess it was a coincidence that I saw urologist about two weeks ago and … >>>>>>>
Rehab and Derby Winner
On 10.02 I go to Bischofswiesen for rehab. The invitation came unexpectedly and pulled a lot of bureaucracy behind it.here a phone call (KV, KlinIk, HA, neurologist, Ergo, DB ect) … >>>>>>>
MSA patients are stubborn(?)
I read a forum post the other day where relatives were complaining about how stubborn their patients are. Then I thought about myself, yes I am stubborn too.
In the … >>>>>>>
What do i get where. Part1
The You came on a Thursday and after I realized that I would not get even with you I wished for someone to tell me where to go.
Now I’m … >>>>>>>
A new chapter
Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went … >>>>>>>
At the sea
I’ve been on holiday now for a couple of days, on the Baltic Sea. At that time I only heard “sea” and said YES. After my diagnosis I am at … >>>>>>>