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Tag: Autonomy

Posted on 16. December 202216. January 2023 by Marta

Tabula Rasa

It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>

Posted on 21. October 202230. October 2022 by Marta

Journey

Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>

Posted on 15. October 202225. October 2022 by Silvia

Life despite MSA – E Cannonball E Autorallye

Before the illness, we had great fun in classic car rallies. Kim was a great co-driver in these, and teasing sports cars with twice as much power (and 10 times … >>>>>>>

Posted on 31. August 20212. September 2021 by Marta

MSA, body care, vanity and things like that…

I’ve been thinking these days, enough is enough, I need to shave my legs. I know that with MSA you have bigger problems than that. But I must say that … >>>>>>>

Posted on 3. July 20214. July 2021 by Marta

Emergency room

The day before yesterday was the day. First time in the emergency room. Urinary retention. I guess it was a coincidence that I saw urologist about two weeks ago and … >>>>>>>

Posted on 7. February 20217. September 2024 by Marion

Rehab and Derby Winner

On 10.02 I go to Bischofswiesen for rehab. The invitation came unexpectedly and pulled a lot of bureaucracy behind it.here a phone call (KV, KlinIk, HA, neurologist, Ergo, DB ect) … >>>>>>>

Posted on 20. December 2020 by Marta

MSA patients are stubborn(?)

I read a forum post the other day where relatives were complaining about how stubborn their patients are. Then I thought about myself, yes I am stubborn too.

In the … >>>>>>>

Posted on 3. December 20207. September 2024 by Marion

What do i get where. Part1

The You came on a Thursday and after I realized that I would not get even with you I wished for someone to tell me where to go.
Now I’m … >>>>>>>

Posted on 1. November 20207. September 2024 by Marion

When it allmost went to Hamburg

 

A birthday was coming up. The sister became one year older. Thinking was called for! Effzeh voucher, favorite scent … has already been given to others. Musical or concert … >>>>>>>

Posted on 8. July 20207. September 2024 by Marion

A new chapter

Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went … >>>>>>>

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Young Alliance Against Multiple System Atrophy (YAMSA) e.V.

Recent Posts

  • Pain in people with multiple system atrophy (MSA) – a web-based survey 16. February 2023
  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022

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    • The last decision
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  • 1 Nicola
    • Impressions of a vacation at the foot of the Olympus Mountains
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    • Pain in people with multiple system atrophy (MSA) – a web-based survey
    • Wenn die Worte fehlen
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