What should I do?

I remember how much hope we had in the Biohaven study.

Now we are almost 2 months away from the end of the official phase. And the question arises:
What happens next?

What are the possibilities?
There is the “Australian” Alerity with ATH 434, but they are only starting with … >>>>>>>

Rehab and Derby Winner

On 10.02 I go to Bischofswiesen for rehab. The invitation came unexpectedly and pulled a lot of bureaucracy behind it.here a phone call (KV, KlinIk, HA, neurologist, Ergo, DB ect) there an order (medical supply store, pharmacy) and where I just do not speak so understandable. Too fast, too high … >>>>>>>

You have shared a memory

Yesterday, 3 years ago, my sister and I were in Belgrade for what was probably the last appearance of our Effzeh in Europe. 

And tomorrow it will be two years ago that my new neurologist spoke the “magic” 3 words: “You have MSA”! In between there is 1 year.
But … >>>>>>>

Back, Right, Left


A beautiful St. Nicholas Day to all of you 🎅 And 2nd Advent
I often read that caring relatives ask for tips on suctioning or other care tips, that patients are concerned about whether it is part of the clinical picture to no longer be able to roll around … >>>>>>>

Why I am not a good walker!

It’s Sunday night, the referee has just blown the whistle for the last game!
My club got the first point and got well into the game in the 2 half time. It is not all lost yet. 🐐🐐🐐
I already have the first Christmas present.
If it wasn’t for this … >>>>>>>

A new chapter

Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went to the zoo.

The last time I was there with the boss and there I was already driven the last … >>>>>>>