I was recently allowed to participate in a question/answer session , with a luminary in the field of atypical Parkinson’s syndromes.
In addition to the medical questions, it was also about dealing with secretions, in professional circles gladly also called Sekretmanagemet, which means it is more than just suction.
By … >>>>>>>
She is only apathetic in bed, wrote me the other day the friend of a MSA sufferer.
That is already unfavorable, because it does not necessarily improve the situation. One loses then the body feeling still faster
You can try this out for yourself by sitting on your hands for … >>>>>>>
A beautiful St. Nicholas Day to all of you 🎅 And 2nd Advent
I often read that caring relatives ask for tips on suctioning or other care tips, that patients are concerned about whether it is part of the clinical picture to no longer be able to roll around … >>>>>>>
Brocade cushions and other aids
The other day I read another post where the patient/family refused a permanent catheter, but the affected patient was at serious risk of falling.
Why is this so? Why risk a fall where I could break who knows what? I can understand why people are … >>>>>>>
When it was said: “You have MSA”, I made the mistake and looked up everywhere, for information, how much time I still have. I became almost hysterical about that. For me, the only time that counted, was when I am going to be bedridden. And I wanted to decide about … >>>>>>>
For people, food represents one of the central areas of activity, which is also closely linked to pleasure, experience, stimulation and, of course, interpersonal communication. However, eating is not only for the purpose of self-preservation, it is also a social act. In the advanced stage of the disease we consume … >>>>>>>