Are you a person living with MSA or are you caring for a person with MSA?
People with MSA frequently experience pain, but its frequency, core features and risk factors … >>>>>>>
Pain in people with multiple system atrophy (MSA) – a web-based survey
How are you?
Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with … >>>>>>>
About breathing
Lately I have noticed a change – among others – in myself. In the evening, when I lie on the couch, I have unusual breathing. I have to take deep … >>>>>>>
The ease of being (or the difficulty of being?)
What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA … >>>>>>>
MSA does not make me a better person, or rather, how this disease exhausts my mind
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>
Like a baby only not so cute
When I move, I remind myself of a baby. I walk, stagger, like a toddler who has just learned to walk. When I move my hand, I am imprecise, I … >>>>>>>
Emergency room
The day before yesterday was the day. First time in the emergency room. Urinary retention. I guess it was a coincidence that I saw urologist about two weeks ago and … >>>>>>>
Travel plans
I am making preparations. I’m going to Bavaria tomorrow and I’m very happy. I was never homesick, for example when I left my birthplace, but I am now. Although I … >>>>>>>
About Dysautonomia
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not … >>>>>>>
The horror symptom
Each one of us has his/her horror symptom. Mine is antecollis. And I am sure I am not alone. For that reason, I want to know how it comes about … >>>>>>>