MSA patients are stubborn(?)

I read a forum post the other day where relatives were complaining about how stubborn their patients are. Then I thought about myself, yes I am stubborn too.

In the forum someone had complained that the father refuses to “pee in the bottle” and that is why he falls on … >>>>>>>

Progress, setbacks

I’ve been in the „living group” in Hessen for a good three weeks now.

Such a move and “inventory through the own life” is without MSA already exhausting and stressful. Anyway, I am glad to have made it. Now I would not have the strength anymore. To the end I … >>>>>>>

The new life

It’s been over a year since my diagnosis now, a lot of things have changed into “habit”. After the diagnosis I was in shock for about three months, badly eaten, badly slept, spent the whole day in bed and cried, non-stop, every day. 

I believe that, if you have no … >>>>>>>

A night out

I know that many people have their hair stood on end from the idea of going to a concert with multi system atrophy, with several thousand others – especially not to a concert by Lindemann, who is known as a provocateur anyway. And this time he did honor his name … >>>>>>>

Everything is spinning

I want to tell you what I found out after being busy with it and doing some research, why I sometimes feel particularly dizzy. Maybe someone else recognizes themselves here?

My research always leads me to the POTS. The term “postural tachycardia syndrome” (POTS) is common.

What is “POTS”?
It’s … >>>>>>>

The curse of a rare disease

By chance I’ve been left without a doctor. My family doctor has unfortunately passed away, my neurologist on maternity leave and my home hospital is closing the “Neurology” department. In addition to that my physiotherapist is also gone and I get a new one, recently my very dedicated speech therapist … >>>>>>>

The worst year of my life is finally over

So, it’s New Year’s Eve, I’m not really impressed. As Harlad Juhnke – a famous German artist – once said “I hate New Year’s Eve, even the amateurs drink there” – a friend of mine reminded me of this saying today. But I think that everybody can celebrate on New … >>>>>>>