Dentist visit

I recently had a visit to the dentist. It is never a pleasure and as the disease progresses it becomes more and more difficult.

My dentist had MSA in the family, so he knows what to look out for.

Regular visits to the dentist are important for all of us. … >>>>>>>

To accept what is

I have not been in touch for a while now. I am busy with setting up my new apartment, my new life. And I would have liked to train myself to the old level – which is unfortunately difficult. According to my study doctor, I haven’t changed much, but I … >>>>>>>

MSA patients are stubborn(?)

I read a forum post the other day where relatives were complaining about how stubborn their patients are. Then I thought about myself, yes I am stubborn too.

In the forum someone had complained that the father refuses to “pee in the bottle” and that is why he falls on … >>>>>>>

Progress, setbacks

I’ve been in the „living group” in Hessen for a good three weeks now.

Such a move and “inventory through the own life” is without MSA already exhausting and stressful. Anyway, I am glad to have made it. Now I would not have the strength anymore. To the end I … >>>>>>>

The new life

It’s been over a year since my diagnosis now, a lot of things have changed into “habit”. After the diagnosis I was in shock for about three months, badly eaten, badly slept, spent the whole day in bed and cried, non-stop, every day. 

I believe that, if you have no … >>>>>>>

A night out

I know that many people have their hair stood on end from the idea of going to a concert with multi system atrophy, with several thousand others – especially not to a concert by Lindemann, who is known as a provocateur anyway. And this time he did honor his name … >>>>>>>

Everything is spinning

I want to tell you what I found out after being busy with it and doing some research, why I sometimes feel particularly dizzy. Maybe someone else recognizes themselves here?

My research always leads me to the POTS. The term “postural tachycardia syndrome” (POTS) is common.

What is “POTS”?
It’s … >>>>>>>