I recently had a visit to the dentist. It is never a pleasure and as the disease progresses it becomes more and more difficult.
My dentist had MSA in the … >>>>>>>
Dentist visit
Once upon a time…. Me – and what remained of it
I sometimes get scared when I walk by a mirror. Is it me or is it someone else? I am so completely a different person than I used to be. … >>>>>>>
To accept what is
I have not been in touch for a while now. I am busy with setting up my new apartment, my new life. And I would have liked to train myself … >>>>>>>
MSA patients are stubborn(?)
I read a forum post the other day where relatives were complaining about how stubborn their patients are. Then I thought about myself, yes I am stubborn too.
In the … >>>>>>>
Progress, setbacks
I’ve been in the „living group” in Hessen for a good three weeks now.
Such a move and “inventory through the own life” is without MSA already exhausting and stressful. … >>>>>>>
Corona makes you dull or there is no Glory in prevention
First of all, the niece has recovered except for an annoying cough. Thank you very much for all your recovery wishes!
Like many others I am stuck at home with … >>>>>>>
Social isolation, new symptoms and other things
What’s happening out there is still very surreal to me.
I feel like I’ve fallen asleep in one world and woke up in another, suddenly Disney has no magic, Paris … >>>>>>>
The new life
It’s been over a year since my diagnosis now, a lot of things have changed into “habit”. After the diagnosis I was in shock for about three months, badly eaten, … >>>>>>>
A night out
I know that many people have their hair stood on end from the idea of going to a concert with multi system atrophy, with several thousand others – especially not … >>>>>>>
Everything is spinning
I want to tell you what I found out after being busy with it and doing some research, why I sometimes feel particularly dizzy. Maybe someone else recognizes themselves here?… >>>>>>>