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Tag: Daily life

Posted on 18. October 2022 by Silvia

Between hope, anger and despair

My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>

Posted on 20. January 20222. February 2022 by Marta

Everything slows down

I took a look at how many posts we wrote a month in the beginning, and how many now… It’s getting less. Writing a post is becoming more and more … >>>>>>>

Posted on 31. August 20212. September 2021 by Marta

MSA, body care, vanity and things like that…

I’ve been thinking these days, enough is enough, I need to shave my legs. I know that with MSA you have bigger problems than that. But I must say that … >>>>>>>

Posted on 23. August 20217. September 2024 by Marion

My sister not my nurse

The other day my sister said to me, when I denounced a wrinkle in the pad: “Jesus Christ, until one has you once in bed”.
Only to the correct assessment, … >>>>>>>

Posted on 12. July 20217. September 2024 by Marion

Oh well, it’s just always something or Colonel Hati

 

The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me … >>>>>>>

Posted on 19. April 20217. September 2024 by Marion

In search of the good feel moments. Or my rehab this year

Sorry, I haven’t been in touch for a while, I had a physical and mental slump, which culminated in the first week of my 30-day rehab in Loipl / Bishofswiesen. … >>>>>>>

Posted on 23. December 20207. September 2024 by Marion

Tipps and Tricks from basal Stimulation

She is only apathetic in bed, wrote me the other day the friend of a MSA sufferer.

That is already unfavorable, because it does not necessarily improve the situation. One … >>>>>>>

Posted on 9. December 20207. September 2024 by Marion

You have shared a memory

Yesterday, 3 years ago, my sister and I were in Belgrade for what was probably the last appearance of our Effzeh in Europe. 

And tomorrow it will be two years … >>>>>>>

Posted on 3. December 20207. September 2024 by Marion

What do i get where. Part1

The You came on a Thursday and after I realized that I would not get even with you I wished for someone to tell me where to go.
Now I’m … >>>>>>>

Posted on 1. November 20207. September 2024 by Marion

When it allmost went to Hamburg

 

A birthday was coming up. The sister became one year older. Thinking was called for! Effzeh voucher, favorite scent … has already been given to others. Musical or concert … >>>>>>>

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Young Alliance Against Multiple System Atrophy (YAMSA) e.V.

Recent Posts

  • Pain in people with multiple system atrophy (MSA) – a web-based survey 16. February 2023
  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022

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  • 1 Marion
    • The long farewell to my voice and the stadium
    • My sister not my nurse
    • Oh well, it’s just always something or Colonel Hati
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    • Impressions of a vacation at the foot of the Olympus Mountains
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    • Pain in people with multiple system atrophy (MSA) – a web-based survey
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    • Between hope, anger and despair

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Top Beiträge

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Reise, Reise
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