Skip to content

Living with MSA / A blog

Our daily life with Multi System Atrophy

  • What is Multi System Atrophy?
  • Useful links
  • Shop
  • About Marion
  • About Marta
  • English
  • German

Tag: Isolation

Isolation

Posted on 16. December 202216. January 2023 by Marta

Tabula Rasa

It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>

Posted on 16. September 2021 by Marta

MSA does not make me a better person, or rather, how this disease exhausts my mind

I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>

Posted on 31. August 20212. September 2021 by Marta

MSA, body care, vanity and things like that…

I’ve been thinking these days, enough is enough, I need to shave my legs. I know that with MSA you have bigger problems than that. But I must say that … >>>>>>>

Kenneichen aG im Schwerbehindertenausweis für Atypische Parkinsonsyndrome

> PETITION JETZT UNTERSCHREIBEN

Subscribe to blog via email

Enter your email address to subscribe to this blog and receive notifications of new posts via email.

Follow us

  • Facebook
  • Twitter

Search Blog

The creators – the second generation

Categories

  • Caregivers (2)
  • General (183)
    • Aids (15)
    • Bureaucracy & paperwork (16)
    • Diagnostics (9)
    • Everyday life (98)
    • Exception (8)
    • Habits (33)
    • MSA & other diseases (15)
    • Nutrition (7)
    • Psyche (73)
    • Rehab (10)
    • Speech therapy (9)
    • Sports & Exercise (24)
    • Studies & Research (19)
    • Symptoms (57)
    • Travel with MSA (13)
    • What is MSA? (14)
  • Guest article (3)
  • Life despite MSA (5)

Contact us

info@leben-mit-msa.de

Tags

  • Abschied von Marta
  • after diagnosis
  • Aids
  • Anesthesia
  • Autonomy
  • Basal Stimulation
  • before diagnosis
  • Blood pressure
  • Bureaucracy
  • Daily life
  • Decay
  • Dentist
  • Diagnosis
  • Disabled person's identity card
  • Emergency
  • Exception
  • Farewell
  • Food & Appetite
  • Food consumption
  • Gait
  • Grief
  • Habits
  • Hospital
  • Infect
  • Isolation
  • Legal issues
  • Loss
  • Marion
  • Marta
  • Motion
  • Nutrition
  • Pension
  • Psyche
  • Rehab
  • Respiration
  • Sadness
  • Sorrow
  • Speech therapy
  • Sport
  • Swallowing
  • Symptoms
  • Tremor
  • Trials & Research
  • Urology
  • Walker

Archives

Young Alliance Against Multiple System Atrophy (YAMSA) e.V.

Recent Posts

  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022
  • Journey 21. October 2022

Recent Comments

  • Kevin on The last decision
  • Henrike on Marta’s journey to Bavaria
  • Kevin on Marta’s journey to Bavaria
  • Darrell Meekcom on How are you?
  • Monika on A man goes when he wants to go

Writers

  • 1 Frank
    • Life despite MSA – E Cannonball E Autorallye
  • 1 Marion
    • The long farewell to my voice and the stadium
    • My sister not my nurse
    • Oh well, it’s just always something or Colonel Hati
  • 1 Marta
    • The last decision
    • Tabula Rasa
    • Journey
  • 1 Nicola
    • Impressions of a vacation at the foot of the Olympus Mountains
  • 1 Silvia
    • Wenn die Worte fehlen
    • Between hope, anger and despair
    • Marta’s journey to Bavaria

Community

  • Iris
  • Kevin
  • Klaudia Reich
  • Britta
  • Simone Jankowsky
  • Karin E.
  • Marta
  • funnysunnyflowerpower
  • Jacky
  • Marta

Top Beiträge

Die letzte Entscheidung
Wenn die Worte fehlen
Was bedeutet MSA für (pflegende) Angehörige?
Tabula Rasa
Was weiss die Wissenschaft über Myoclonus?
Wenn eine Tür zu geht, geht eine andere auf (ob man will oder nicht)
Drei Wochen Therapie – ein Resümee
Wenn‘s brodelt -Das Sekretmanagement
The last decision
Nach dem Regen kommt immer Sonnenschein
Privacy & Cookies:
Diese Seite benutzt Cookies. Mit Fortfahren erklären Sie sich einverstanden. / This site uses cookies.By continuing to use this website, you agree to their use. Cookie-Richtlinie / Cookie Policy
Impressum Proudly powered by WordPress