Our daily life with Multi System Atrophy
Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with that. Often I answer the question with a general “As always”. But often the question is not meant superficially at … >>>>>>>
I have not been in touch for a while now. I am busy with setting up my new apartment, my new life. And I would have liked to train myself to the old level – which is unfortunately difficult. According to my study doctor, I haven’t changed much, but I … >>>>>>>
I was recently allowed to participate in a question/answer session , with a luminary in the field of atypical Parkinson’s syndromes.
In addition to the medical questions, it was also about dealing with secretions, in professional circles gladly also called Sekretmanagemet, which means it is more than just suction.
By … >>>>>>>
It happened. I can’t gloss it over anymore, I can’t blame it on the time of the day or on the psyche, my gait has become worse. I don’t think it affects my balance, simply my legs do things they shouldn’t. And although my legs are healthy and certainly not … >>>>>>>
Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went to the zoo.
The last time I was there with the boss and there I was already driven the last … >>>>>>>
I’ve been here for about 10 days, slowly I know my way around the house and slowly I know the procedures. In the meantime I have learned that the majority of the guests are MS patients, followed by stroke patients and the remaining 20% fill in Parkinson’s and the rest. … >>>>>>>
Recently I read a post which said: “We delayed the wheelchair as long as possible”.
OK, first of all: everybody has to find his own way and I don’t criticize anyone else for his decision.
Yes, also for me it was a surrender before this disease when my boss visited … >>>>>>>