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Tag: after diagnosis

Posted on 16. December 202216. January 2023 by Marta

Tabula Rasa

It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>

Posted on 2. November 20223. November 2022 by Nicola

Impressions of a vacation at the foot of the Olympus Mountains

From September 10 to 24, 2022 I was in Greece, more precisely, in the north (Macedonia). Of course, I did not travel alone, but with my husband and my caregiver … >>>>>>>

Posted on 27. April 2022 by Marta

This demand for happiness and gratitude is annoying

Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>

Posted on 17. April 202220. April 2022 by Marta

How are you?

Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with … >>>>>>>

Posted on 25. March 2022 by Marta

About breathing

Lately I have noticed a change – among others – in myself. In the evening, when I lie on the couch, I have unusual breathing. I have to take deep … >>>>>>>

Posted on 24. February 202228. September 2022 by Marta

Do what is possible

For about two weeks now lives the sports group. That’s me, and a handful of participants from our online group. We do one hour of sports every day, each as … >>>>>>>

Posted on 2. February 202211. March 2022 by Marta

Dentist visit

I recently had a visit to the dentist. It is never a pleasure and as the disease progresses it becomes more and more difficult.

My dentist had MSA in the … >>>>>>>

Posted on 20. January 20222. February 2022 by Marta

Everything slows down

I took a look at how many posts we wrote a month in the beginning, and how many now… It’s getting less. Writing a post is becoming more and more … >>>>>>>

Posted on 29. December 202125. September 2022 by Marta

Three weeks of therapy – a summary

So, I’m almost done here. All in all, I can say that the whole thing has not really brought me anything. If, then so much that I speak here more, … >>>>>>>

Posted on 17. December 202117. December 2021 by Marta

Therapy

Many greetings from Biskirchen from the Gertrudisklinik! I have been here since Monday and will stay for three weeks in total.So over the holidays, but because I’m not necessarily the … >>>>>>>

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  • Pain in people with multiple system atrophy (MSA) – a web-based survey 16. February 2023
  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022

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    • Pain in people with multiple system atrophy (MSA) – a web-based survey
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