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Category: Psyche

Psyche

Posted on 16. December 202216. January 2023 by Marta

Tabula Rasa

It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>

Posted on 21. October 202230. October 2022 by Marta

Journey

Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>

Posted on 18. October 2022 by Silvia

Between hope, anger and despair

My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>

Posted on 27. April 2022 by Marta

This demand for happiness and gratitude is annoying

Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>

Posted on 24. February 202228. September 2022 by Marta

Do what is possible

For about two weeks now lives the sports group. That’s me, and a handful of participants from our online group. We do one hour of sports every day, each as … >>>>>>>

Posted on 20. January 20222. February 2022 by Marta

Everything slows down

I took a look at how many posts we wrote a month in the beginning, and how many now… It’s getting less. Writing a post is becoming more and more … >>>>>>>

Posted on 7. December 2021 by Marta

A man goes when he wants to go

Our paths crossed for a sad reason. And we spent too little time together.

You always had a kind word for all of us. For that I am now a … >>>>>>>

Posted on 17. October 2021 by Marta

The final result

It would take a few days to realize. Out of the dream…
A few days ago came the press release from Biohaven itself that the drug is unfortunately ineffective. I … >>>>>>>

Posted on 25. September 20217. September 2024 by Marion

The long farewell to my voice and the stadium

Somewhere in the parental cellar it still be, my first recording, where I
sang full of fervor. 2 Little Italians was one of my favorites
I was 3. and this … >>>>>>>

Posted on 16. September 2021 by Marta

MSA does not make me a better person, or rather, how this disease exhausts my mind

I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>

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Zusammen sind wir stark

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Young Alliance Against Multiple System Atrophy (YAMSA) e.V.

Recent Posts

  • Pain in people with multiple system atrophy (MSA) – a web-based survey 16. February 2023
  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
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    • Pain in people with multiple system atrophy (MSA) – a web-based survey
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