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Posted on 19. January 202319. January 2023 by Silvia

Wenn die Worte fehlen

Marta hat es geschafft, sie ist gestern, am 18. Januar 2023, verstorben. Sie ist friedlich eingeschlafen. Marta war ein ganz besonderer Mensch. Es war immer klar, dass dieser Tag kommt, … >>>>>>>

Posted on 18. January 202316. January 2023 by Marta

The last decision

I’ve been writing this post forever. By the time you read it, I most likely won’t be around. I am publishing this post with timing. Yes, it is a concern … >>>>>>>

Posted on 16. December 202216. January 2023 by Marta

Tabula Rasa

It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>

Posted on 2. November 20223. November 2022 by Nicola

Impressions of a vacation at the foot of the Olympus Mountains

From September 10 to 24, 2022 I was in Greece, more precisely, in the north (Macedonia). Of course, I did not travel alone, but with my husband and my caregiver … >>>>>>>

Posted on 21. October 202230. October 2022 by Marta

Journey

Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>

Posted on 18. October 2022 by Silvia

Between hope, anger and despair

My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>

Posted on 15. October 202225. October 2022 by Frank

Life despite MSA – E Cannonball E Autorallye

Before the illness, we had great fun in classic car rallies. Kim was a great co-driver in these, and teasing sports cars with twice as much power (and 10 times … >>>>>>>

Posted on 9. October 2022 by Silvia

Marta’s journey to Bavaria

Hello dear ones,
I got in touch with Malteser to make it possible for Marta to travel to Bavaria once again, to the place where she loved to be and … >>>>>>>

Posted on 18. August 2022 by Marta

When words fail

I found out this morning that Marion has passed away. I know that she is now redeemed, but I am sad and stunned. It happened so fast…

She was my … >>>>>>>

Posted on 27. April 2022 by Marta

This demand for happiness and gratitude is annoying

Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>

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Recent Posts

  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022
  • Journey 21. October 2022

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    • Life despite MSA – E Cannonball E Autorallye
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Top Beiträge

Die letzte Entscheidung
Was bedeutet MSA für (pflegende) Angehörige?
Wenn die Worte fehlen
Tabula Rasa
Was weiss die Wissenschaft über Myoclonus?
Wenn eine Tür zu geht, geht eine andere auf (ob man will oder nicht)
Drei Wochen Therapie – ein Resümee
Wenn‘s brodelt -Das Sekretmanagement
Reise, Reise
The last decision
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