Our daily life with Multi System Atrophy
Sometimes I ask myself what is wrong with me. Sometimes I have something and I don’t understand what it is. I also often don’t know if it has something to do with my basic disease, MSA. What I do know is that this is a disease of the brain, and … >>>>>>>
It’s Sunday night, the referee has just blown the whistle for the last game!
My club got the first point and got well into the game in the 2 half time. It is not all lost yet. 🐐🐐🐐
I already have the first Christmas present.
If it wasn’t for this … >>>>>>>
There are research studies that suggest that stress has a negative influence on neurological diseases. Stress increases damage to dopamine cells, which in turn leads to more severe symptoms. Acute stress most likely worsens motor symptoms, which include bradykinesia, freezing and trembling.
What is stress; it is emotional or physical … >>>>>>>
Brocade cushions and other aids
The other day I read another post where the patient/family refused a permanent catheter, but the affected patient was at serious risk of falling.
Why is this so? Why risk a fall where I could break who knows what? I can understand why people are … >>>>>>>
This is a topic for all of us – we just don’t like to talk about it (and a few other topics) – problems with peeing.
The whole thing ends for us with a catheter which makes us all feel uncomfortable. Me at least, because not having simple bodily functions … >>>>>>>
I can’t stand it if I’m not taken for full due. I used to be a self-confident and active person, I have always made my own decisions, which makes me even more crazy when my mind is questioned.
I know that the reduction can take place everywhere in the body, … >>>>>>>
I want to moan about something that excites us all. Whether you like it or not, you compare yourself with others, preferably with similar patients. At least I do. Sometimes I wonder, if knowledge is a blessing, or a curse. Who can lean on a caring person, can relieve himself … >>>>>>>
Go back to the beginning…
…go there immediately. Do not pass go, do not draw 4000 Euro!
I filled up like this or something like that on 12.08 when I was lying in my bed on the periphery and could not even wash my face, let alone bring a spoon … >>>>>>>
Since I have participated in this trial, I observe myself differently. Now I am afraid of any deterioration, because it would (probably) mean placebo.
In general it is very difficult to say whether I feel better or worse, because it is determined by the shape of the day and the … >>>>>>>
Probable, possible or safe MSA and how do I donate my brain?
Yeah, what now? Do I have MSA or not?
Probably most people ask themselves that when they hold their doctor’s letter in their hands.
On the letter, under Diagnosis, the words: probable or possible MSA are often written.… >>>>>>>