Are you a person living with MSA or are you caring for a person with MSA?
People with MSA frequently experience pain, but its frequency, core features and risk factors … >>>>>>>
Pain in people with multiple system atrophy (MSA) – a web-based survey
Wenn die Worte fehlen
Marta hat es geschafft, sie ist gestern, am 18. Januar 2023, verstorben. Sie ist friedlich eingeschlafen. Marta war ein ganz besonderer Mensch. Es war immer klar, dass dieser Tag kommt, … >>>>>>>
The last decision
I’ve been writing this post forever. By the time you read it, I most likely won’t be around. I am publishing this post with timing. Yes, it is a concern … >>>>>>>
Tabula Rasa
It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>
Impressions of a vacation at the foot of the Olympus Mountains
From September 10 to 24, 2022 I was in Greece, more precisely, in the north (Macedonia). Of course, I did not travel alone, but with my husband and my caregiver … >>>>>>>
Journey
Now I have not written anything for a long time. There are several reasons for this: firstly, writing is very exhausting for me. I have become very slow. And instead … >>>>>>>
Between hope, anger and despair
My husband was diagnosed in June 21. The diagnosis of MSA C completely shocked us. Soon after, we heard something about a promising new substance that was soon to be … >>>>>>>
Life despite MSA – E Cannonball E Autorallye
Before the illness, we had great fun in classic car rallies. Kim was a great co-driver in these, and teasing sports cars with twice as much power (and 10 times … >>>>>>>
Marta’s journey to Bavaria
Hello dear ones,
I got in touch with Malteser to make it possible for Marta to travel to Bavaria once again, to the place where she loved to be and … >>>>>>>
When words fail
I found out this morning that Marion has passed away. I know that she is now redeemed, but I am sad and stunned. It happened so fast…
She was my … >>>>>>>