Our daily life with Multi System Atrophy
What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA sufferer feels. We are too different.
In any case, I feel primarily like someone who is very-very drunk. For almost … >>>>>>>
The article has been half finished on the iPad for quite some time. Somehow I lacked
the muse, the time and I did not want to deal with me and MSA excuse.
And so I sit in front of the watch the EM final Italy against England.
And, no … >>>>>>>
Sorry, I haven’t been in touch for a while, I had a physical and mental slump, which culminated in the first week of my 30-day rehab in Loipl / Bishofswiesen. One or the other may now ask how I ever came to Loipl. I had the following priorities in, exactly … >>>>>>>
Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went to the zoo.
The last time I was there with the boss and there I was already driven the last … >>>>>>>
…now depends on many factors. How did I sleep, the weather, did I drink enough (and I don’t mean alcohol), how strong are my back pains, were the last days physically exhausting ?
In another life I have always liked to walk, I have never been a runner rather a … >>>>>>>
Trappen in endless slow motion…
…that’s what I feel like now. Especially this morning when I was spooning my breakfast egg and it took forever for the spoon to work its way through the egg and recharge it. Sometimes I feel the same when I get out of the car!… >>>>>>>
I’ve read that a lot: there’s no pain in MSA. At least, I thought so. I have suffered from pain before, which was very strong and I was relieved to read that.
In the meantime I know from countless forum entries, from well-known MSA patient reports and from my own … >>>>>>>
These are travel tips from Joshua Lee Calvert. Thanks for that and the permission to publish it here. These are all useful tips, and it also motivates you to do as much as you can, with MSA. Are you missing anything useful? Write in the comments!
——–
On a … >>>>>>>
I celebrate every time I can still do it myself: Cutting the grass. The problems will start, I think, if I can’t do it myself. That’s the advantage of living alone. If I had a man, he would say “Leave it baby, I’ll do it”. And I would watch lemonade … >>>>>>>
Today my last week in rehab started.
And promptly I was dawdling so much that I was almost too late for water gymnastics. Hennes also contacted me to announce that the new jerseys had arrived. Jerseys are always a tricky topic for football fans. And as you know, the internet … >>>>>>>