I was inspired by Marion and I remember, what it was like for me, two years ago. Yes, it was pretty much on the exact day, I first heard about … >>>>>>>
My new companion the Multi System Atrophy
Camptocormia and what else is on my minds
Today is World Down’s Day. To draw attention to it, one should wear two different socks. Actually, I should be sitting in the Müngersdorfer Stadium with my 2 different socks … >>>>>>>
The curse of a rare disease
By chance I’ve been left without a doctor. My family doctor has unfortunately passed away, my neurologist on maternity leave and my home hospital is closing the “Neurology” department. In … >>>>>>>
When one door closes, another door opens (whether you like it or not)
It’s almost a year since I got my diagnosis, I’ll never forget that day. A year ago I had “my last unconcerned moments”.
I’m writing this now, to be a … >>>>>>>
This is also part of it
We all don’t like to talk about it, but we all die. All of us. And dying healthy is stupid, dying sick with MSA is stupid. A meteorite on my … >>>>>>>
How time goes by
I haven’t had a computer for almost a month now. That is the reason for my absence. Typing on my mobile phone is a great exercise, but I couldn’t and … >>>>>>>
The privilege of being disabled
After my diagnosis, I got ridiculous 40 disabled points, which is almost nothing. That means kind of 300 Euro tax advantage in a year, or something like that. I really … >>>>>>>