Our daily life with Multi System Atrophy
I was inspired by Marion and I remember, what it was like for me, two years ago. Yes, it was pretty much on the exact day, I first heard about these three fateful letters. Unsuspectingly, I went to the hospital, on St. Nicholas Day two years ago, where I had … >>>>>>>
Today is World Down’s Day. To draw attention to it, one should wear two different socks. Actually, I should be sitting in the Müngersdorfer Stadium with my 2 different socks to see the glorious effzeh win. Actually! Actually I am sitting in my armchair and watching forever soccer – The … >>>>>>>
By chance I’ve been left without a doctor. My family doctor has unfortunately passed away, my neurologist on maternity leave and my home hospital is closing the “Neurology” department. In addition to that my physiotherapist is also gone and I get a new one, recently my very dedicated speech therapist … >>>>>>>
It’s almost a year since I got my diagnosis, I’ll never forget that day. A year ago I had “my last unconcerned moments”.
I’m writing this now, to be a little closer to newly diagnosed patients, to provide some assistance to them and to show, that the earth is still … >>>>>>>
We all don’t like to talk about it, but we all die. All of us. And dying healthy is stupid, dying sick with MSA is stupid. A meteorite on my head in old age (what is old age?) would be great…
To deal with the topic, one’s own way to … >>>>>>>
I haven’t had a computer for almost a month now. That is the reason for my absence. Typing on my mobile phone is a great exercise, but I couldn’t and didn’t wanted to write a whole article on it. So I read Marion’s articles diligently and dedicated myself to everyday … >>>>>>>
After my diagnosis, I got ridiculous 40 disabled points, which is almost nothing. That means kind of 300 Euro tax advantage in a year, or something like that. I really have to shake my head, I have an incurable disease, my life feels like a carousel ride in my head … >>>>>>>