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Tag: Bureaucracy

Posted on 5. December 20205. December 2020 by Marta

My new companion the Multi System Atrophy

I was inspired by Marion and I remember, what it was like for me, two years ago. Yes, it was pretty much on the exact day, I first heard about … >>>>>>>

Posted on 21. March 2020 by Marion

Camptocormia and what else is on my minds

Today is World Down’s Day. To draw attention to it, one should wear two different socks. Actually, I should be sitting in the Müngersdorfer Stadium with my 2 different socks … >>>>>>>

Posted on 26. January 20207. February 2020 by Marta

The curse of a rare disease

By chance I’ve been left without a doctor. My family doctor has unfortunately passed away, my neurologist on maternity leave and my home hospital is closing the “Neurology” department. In … >>>>>>>

Posted on 18. October 201919. October 2019 by Marta

When one door closes, another door opens (whether you like it or not)

It’s almost a year since I got my diagnosis, I’ll never forget that day. A year ago I had “my last unconcerned moments”.
I’m writing this now, to be a … >>>>>>>

Posted on 23. September 201923. September 2019 by Marta

This is also part of it

We all don’t like to talk about it, but we all die. All of us. And dying healthy is stupid, dying sick with MSA is stupid. A meteorite on my … >>>>>>>

Posted on 26. August 201926. August 2019 by Marta

How time goes by

I haven’t had a computer for almost a month now. That is the reason for my absence. Typing on my mobile phone is a great exercise, but I couldn’t and … >>>>>>>

Posted on 2. July 20198. July 2019 by Marta

The privilege of being disabled

After my diagnosis, I got ridiculous 40 disabled points, which is almost nothing. That means kind of 300 Euro tax advantage in a year, or something like that. I really … >>>>>>>

Kenneichen aG im Schwerbehindertenausweis für Atypische Parkinsonsyndrome

> PETITION JETZT UNTERSCHREIBEN

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The creators – the second generation

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Archives

Young Alliance Against Multiple System Atrophy (YAMSA) e.V.

Recent Posts

  • Wenn die Worte fehlen 19. January 2023
  • The last decision 18. January 2023
  • Tabula Rasa 16. December 2022
  • Impressions of a vacation at the foot of the Olympus Mountains 2. November 2022
  • Journey 21. October 2022

Recent Comments

  • Kevin on The last decision
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  • Kevin on Marta’s journey to Bavaria
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  • Monika on A man goes when he wants to go

Writers

  • 1 Frank
    • Life despite MSA – E Cannonball E Autorallye
  • 1 Marion
    • The long farewell to my voice and the stadium
    • My sister not my nurse
    • Oh well, it’s just always something or Colonel Hati
  • 1 Marta
    • The last decision
    • Tabula Rasa
    • Journey
  • 1 Nicola
    • Impressions of a vacation at the foot of the Olympus Mountains
  • 1 Silvia
    • Wenn die Worte fehlen
    • Between hope, anger and despair
    • Marta’s journey to Bavaria

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Top Beiträge

Die letzte Entscheidung
Was bedeutet MSA für (pflegende) Angehörige?
Wenn die Worte fehlen
Tabula Rasa
Was weiss die Wissenschaft über Myoclonus?
Wenn eine Tür zu geht, geht eine andere auf (ob man will oder nicht)
Drei Wochen Therapie – ein Resümee
Wenn‘s brodelt -Das Sekretmanagement
Reise, Reise
The last decision
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