(Guest article from Silvia)
In 2017, my husband had the first symptoms – slight balance problems and speech was sometimes a little slurred. At that time he was still very sporty, hiking in the mountains, cycling with friends and riding his motorcycle were his hobbies. Then came the first … >>>>>>>
What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA sufferer feels. We are too different.
In any case, I feel primarily like someone who is very-very drunk. For almost … >>>>>>>
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball cap. I always go into nature, where there is less going on, and not in the city. I prefer to … >>>>>>>
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not know, what comes from the disease and what not. But it is a little bit like our body is a … >>>>>>>
I ask myself again and again the question whether one can accept this condition ever. Through conversations, the topic now comes up again. Others say, they have the effort to accept the disease to be able to close, to live on. One also takes help from psychologists, social workers or … >>>>>>>
Each one of us has his/her horror symptom. Mine is antecollis. And I am sure I am not alone. For that reason, I want to know how it comes about and what I can do about it.
Antecollis is the term used to describe excessive forward flexion of the neck … >>>>>>>
Actually, we all have our problems and fears with this. To understand all this a little better, I have looked around. My information is based on American sources, so it may not be complete. Please feel free to make additions / corrections. The information is based on the pages of … >>>>>>>
It is winter and we are all afraid of viruses, germs, diseases in general, which can develop more complicated than usual in our body. Every little cold can degenerate and turn into sepsis. Nowadays we are even more careful, we also have COVID-19, nevertheless or even more we are … >>>>>>>
For a long time I have been thinking about what is wrong with me. People in general credit me with much more than I can perform. At the beginning of my illness, even before my diagnosis, I often thought I was simply listless and lazy. As if my butt and … >>>>>>>
I often read that MSA can have autonomic, cerebellar, pyramidal and extrapyramidal symptoms. It’s time for me to get into these pyramidal things, I didn’t know about them before and the topic was always too scientific for me. But I stumble over again and again to ignore it. As … >>>>>>>