It was at the beginning of December four years that Santa Claus gave me the diagnosis. I must have been terribly naughty. I will never forget the shock of that … >>>>>>>
Tabula Rasa
What does MSA mean for (care) relatives?
(Guest article from Silvia)
In 2017, my husband had the first symptoms – slight balance problems and speech was sometimes a little slurred. At that time he was still … >>>>>>>
The ease of being (or the difficulty of being?)
What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA … >>>>>>>
MSA does not make me a better person, or rather, how this disease exhausts my mind
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>
About Dysautonomia
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not … >>>>>>>
To accept?
I ask myself again and again the question whether one can accept this condition ever. Through conversations, the topic now comes up again. Others say, they have the effort to … >>>>>>>
The horror symptom
Each one of us has his/her horror symptom. Mine is antecollis. And I am sure I am not alone. For that reason, I want to know how it comes about … >>>>>>>
What does science know about myoclonus?
Actually, we all have our problems and fears with this. To understand all this a little better, I have looked around. My information is based on American sources, so it … >>>>>>>
How to avoid sepsis and what is actually a sepsis?
It is winter and we are all afraid of viruses, germs, diseases in general, which can develop more complicated than usual in our body. Every little cold can degenerate and … >>>>>>>
Bad energy, exhaustion or fatigue?
For a long time I have been thinking about what is wrong with me. People in general credit me with much more than I can perform. At the beginning of … >>>>>>>