Everyday life at home has me again and I am busy with the usual things like PT, OT, speech therapy, psychologist… First I try to get out of jet lag, … >>>>>>>
Everything is “a little” different…
I am now more than a week in Canada and try to see and experience as much as I can.
The first week I enjoyed at home from my cousin, … >>>>>>>
Travel with MSA
I am in Canada now for a few days! Seeing the Ocean, was on my bucket list, besides I have two cousins with family here and my godchild whom I … >>>>>>>
Let’s go to Canada!
Sleep twice more! I am super excited. I’ve been packing in my head for days now and hope everything goes smoothly.
I have flown before several times in my life … >>>>>>>
How time goes by
I haven’t had a computer for almost a month now. That is the reason for my absence. Typing on my mobile phone is a great exercise, but I couldn’t and … >>>>>>>
Cripples, bastards and broken things
I think everyone who’s seen the fantasy series Game of Thrones will this say something, it’s the title of an episode. It’s about a dwarf, who can only owe his … >>>>>>>
The eternal question “Is this a symptom or not?”
The strange thing about this disease is that it can cause anything. If I have something, I will automatically blame the disease. What you think? Dry scalp or ingrown toenails? … >>>>>>>
What the future has in store for us….
I took this picture about twenty years ago, at least. In Venice, during a holiday in Italy. It is still available for purchase in a picture database. At that time … >>>>>>>
I did it!
I celebrate every time I can still do it myself: Cutting the grass. The problems will start, I think, if I can’t do it myself. That’s the advantage of living … >>>>>>>
How important and valuable eye sight can be – a later insight
Many things we learn to appreciate only after we have lost them. This is very human. MSA patients know, what it feels like, we are constantly losing abilities we used … >>>>>>>