I wonder if I want too much. I want a doctor who knows me well and takes care of me. Who is interested, curious, ambitious, inventive, a doer. When I … >>>>>>>
One step forward, two backwards
I have been diagnosed with MSA-C for half a year now and since February I have been consciously doing something about the decay. Of course it’s hard to motivate myself, … >>>>>>>
From another life
I had a visit from a dear friend from my old home last week. Not only did she visit me and bring me some treats from home, she also took … >>>>>>>
Like a dead horse
I woke up like every day. It’s clear to me that I need a little time to reach my “operating temperature”. Then I realized: Coffee is out…
The heat was … >>>>>>>
The magic pill, trials, research
The hope of all of us. That one day – as soon as possible – there will be a medicine that will help us, slow down the disease, even reverse … >>>>>>>
The privilege of being disabled
After my diagnosis, I got ridiculous 40 disabled points, which is almost nothing. That means kind of 300 Euro tax advantage in a year, or something like that. I really … >>>>>>>
The Little Asshole in my Head
I had this idea from the beginning. There is a small, ugly and malicious creature sitting in my head, randomly switching off the light, from time to time. And I … >>>>>>>
We exercise what we have taken for granted up to now
I must honestly say, speech therapy always ended up as last for me. Up to now I have also been able to hide my language problems well, hardly anyone has … >>>>>>>
How often does an MSA patient have to change clothes?
I notice that my most important piece of clothing has become the T-shirt. Because I don’t like stains, or because I want to walk around in greasy tops, I have … >>>>>>>
Nostalgia and other nasty things that don’t help you
It started out like a beautiful day – apart from these bestially high temperatures. I took the S-Bahn to my good friend Birgit, who lives at the other end of … >>>>>>>