I wonder if I want too much. I want a doctor who knows me well and takes care of me. Who is interested, curious, ambitious, inventive, a doer. When I … >>>>>>>
One step forward, two backwards
I have been diagnosed with MSA-C for half a year now and since February I have been consciously doing something about the decay. Of course it’s hard to motivate myself, … >>>>>>>
From another life
I had a visit from a dear friend from my old home last week. Not only did she visit me and bring me some treats from home, she also took … >>>>>>>
Like a dead horse
I woke up like every day. It’s clear to me that I need a little time to reach my “operating temperature”. Then I realized: Coffee is out…
The heat was … >>>>>>>
The magic pill, trials, research
The hope of all of us. That one day – as soon as possible – there will be a medicine that will help us, slow down the disease, even reverse … >>>>>>>
Last week in rehab: Monday and a little “effzehcontent”
Today my last week in rehab started.
And promptly I was dawdling so much that I was almost too late for water gymnastics. Hennes also contacted me to announce that … >>>>>>>
The privilege of being disabled
After my diagnosis, I got ridiculous 40 disabled points, which is almost nothing. That means kind of 300 Euro tax advantage in a year, or something like that. I really … >>>>>>>
MSA and Summer
The last four days I wouldn’t really be well. If you have a neurological disease, the heat isn’t really good for you. You have considerably less reserves, you get tired … >>>>>>>
The Little Asshole in my Head
I had this idea from the beginning. There is a small, ugly and malicious creature sitting in my head, randomly switching off the light, from time to time. And I … >>>>>>>
Calories, Calories, Calories (written in nurse mode)
For people, food represents one of the central areas of activity, which is also closely linked to pleasure, experience, stimulation and, of course, interpersonal communication. However, eating is not only … >>>>>>>