Since I have participated in this trial, I observe myself differently. Now I am afraid of any deterioration, because it would (probably) mean placebo.
In general it is very difficult … >>>>>>>
Our daily life with Multi System Atrophy
Since I have participated in this trial, I observe myself differently. Now I am afraid of any deterioration, because it would (probably) mean placebo.
In general it is very difficult … >>>>>>>
Probable, possible or safe MSA and how do I donate my brain?
Yeah, what now? Do I have MSA or not?
Probably most people ask themselves that when they hold … >>>>>>>
Al this started when I started getting eye infections all the time, even before my diagnosis. I wore out tons of contact lenses. I had suspected dirty mascara or similar. … >>>>>>>
Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went … >>>>>>>
I have no idea whether my condition comes from the removal/change, or from MSA. I am somehow out of rhythm, I have fears for the future, questions, concerns, I am … >>>>>>>
I’ve been in the „living group” in Hessen for a good three weeks now.
Such a move and “inventory through the own life” is without MSA already exhausting and stressful. … >>>>>>>
I have been living in isolation for quite some time now, but I must honestly say that this does not affect me that much. I’m going out 10% less than … >>>>>>>
I’m now four weeks in isolation. What pisses me off about this, is that I live in chaos – waiting to move. Yesterday, I searched through the already packed boxes, … >>>>>>>
Third week in isolation. There I praise my social incontinence, but slowly the roof falls on my head. But that has only partly to do with this virus, it has … >>>>>>>
Today is World Down’s Day. To draw attention to it, one should wear two different socks. Actually, I should be sitting in the Müngersdorfer Stadium with my 2 different socks … >>>>>>>