Many things we learn to appreciate only after we have lost them. This is very human. MSA patients know, what it feels like, we are constantly losing abilities we used … >>>>>>>
The most important people in my life – how is it vice versa?
I wonder if I want too much. I want a doctor who knows me well and takes care of me. Who is interested, curious, ambitious, inventive, a doer. When I … >>>>>>>
One step forward, two backwards
I have been diagnosed with MSA-C for half a year now and since February I have been consciously doing something about the decay. Of course it’s hard to motivate myself, … >>>>>>>
Like a dead horse
I woke up like every day. It’s clear to me that I need a little time to reach my “operating temperature”. Then I realized: Coffee is out…
The heat was … >>>>>>>
MSA and Summer
The last four days I wouldn’t really be well. If you have a neurological disease, the heat isn’t really good for you. You have considerably less reserves, you get tired … >>>>>>>
The Little Asshole in my Head
I had this idea from the beginning. There is a small, ugly and malicious creature sitting in my head, randomly switching off the light, from time to time. And I … >>>>>>>
Calories, Calories, Calories (written in nurse mode)
For people, food represents one of the central areas of activity, which is also closely linked to pleasure, experience, stimulation and, of course, interpersonal communication. However, eating is not only … >>>>>>>
We exercise what we have taken for granted up to now
I must honestly say, speech therapy always ended up as last for me. Up to now I have also been able to hide my language problems well, hardly anyone has … >>>>>>>