There is always a question about CoQ10. Doctors recommend it again and again, on the market there are a lot of different offers, it is very difficult to make a … >>>>>>>
You are missing
The whole thing started with the diagnosis, first came Marion, that was the birth of this blog. Then came quite quickly Manuela, Heide, Sandra… and then the WhatsApp group was … >>>>>>>
Hope dies last
Since yesterday my trial is over. When I think back how much we expected in the beginning and what hopes we had!
Now one year is over and I have … >>>>>>>
Trip
I wanted to tell you about my trip… First of all, I am incredibly grateful to my AWO caregiver for making this trip with me, because I couldn’t have done … >>>>>>>
Travel plans
I am making preparations. I’m going to Bavaria tomorrow and I’m very happy. I was never homesick, for example when I left my birthplace, but I am now. Although I … >>>>>>>
About Dysautonomia
Dysautonomia is something that catches all of us in the course of the disease. It can be confusing, it can be anything and in the symptom-variety you often do not … >>>>>>>
Once upon a time…. Me – and what remained of it
I sometimes get scared when I walk by a mirror. Is it me or is it someone else? I am so completely a different person than I used to be. … >>>>>>>
To accept?
I ask myself again and again the question whether one can accept this condition ever. Through conversations, the topic now comes up again. Others say, they have the effort to … >>>>>>>
The horror symptom
Each one of us has his/her horror symptom. Mine is antecollis. And I am sure I am not alone. For that reason, I want to know how it comes about … >>>>>>>
Not obvious
I live my everyday life, day in and day out. The highlights, the special moments consist of banalities, so in comparison to the past at least. In the past, the … >>>>>>>