I had a visit from a dear friend from my old home last week. Not only did she visit me and bring me some treats from home, she also took … >>>>>>>
From another life
Like a dead horse
I woke up like every day. It’s clear to me that I need a little time to reach my “operating temperature”. Then I realized: Coffee is out…
The heat was … >>>>>>>
The magic pill, trials, research
The hope of all of us. That one day – as soon as possible – there will be a medicine that will help us, slow down the disease, even reverse … >>>>>>>
The Little Asshole in my Head
I had this idea from the beginning. There is a small, ugly and malicious creature sitting in my head, randomly switching off the light, from time to time. And I … >>>>>>>
How often does an MSA patient have to change clothes?
I notice that my most important piece of clothing has become the T-shirt. Because I don’t like stains, or because I want to walk around in greasy tops, I have … >>>>>>>
Nostalgia and other nasty things that don’t help you
It started out like a beautiful day – apart from these bestially high temperatures. I took the S-Bahn to my good friend Birgit, who lives at the other end of … >>>>>>>
Daily life
Sometimes the days go by that have to be filled with something… I must admit it takes a while until I get out of bed and make myself suitable for … >>>>>>>
How two weeks doing nothing avenge themselves
I visited my family two weeks ago and then had an eye accident, which prevented my training program. The time with my family was exhausting anyway. I can feel it … >>>>>>>
Clothes, high heels, sports equipment – everything from the time “before the diagnosis” – where to put it?
This is like the time calculation “before and after Christ” – for me there is “before and after the diagnosis”.
Before the diagnosis I possessed many fancy things. Things that … >>>>>>>
Lying in bed is easier than moving around
My life is like a never-ending carousel ride. I can only stop it if I sit down or lie down. I think it often makes me sick from this dizziness, … >>>>>>>