I wanted to tell you about my trip… First of all, I am incredibly grateful to my AWO caregiver for making this trip with me, because I couldn’t have done it alone. And second, what you see up there in the picture is my former route to work. I drove along there twice a day for 8 years. I didn’t even notice how idyllic it is back then.
Besides, even though it was exhausting and full of excitement, I can recommend it to everyone. It is simply good to get out of the usual rut. Admittedly, I often wished to be within my four walls and in my bed, but in the end I was glad.
I tolerated the trip well, I was afraid that we would have to stop every few meters because of my overactive bladder, but was not so, neither towards nor on the way back. Okay, I admit, as far as drinking is concerned, I rather held back. What can be helpful in the case, however, is a Euro key with which you can unlock any disabled toilet, for 23 euros is to have, requires a severely disabled ID. https://cbf-da.de/de/shop/euro-wc-schluessel/
We stayed in Bavaria just before the border, in a hotel that looks better in photos than live (funny, I know this from somewhere else…), but the bed was clean and we got breakfast.
The trip to Innsbruck was a bit exciting. We were a little late, traffic was heavy, but the way was beautiful. In Innsbruck, everything was a little different, Corona-conditioned was a little rebuilt and so the terrain was a little harder to get around. Parking was a bit adventurous.
So first I was a little disappointed because the professor himself was not there. I had been there too often for that, obviously. As a replacement, there was another well-known doctor from his team – and 3 young doctors, one of whom even could not speak German….- The doctor was there 2 years ago, when I was there for the first time and could remember me! All in all she is more satisfied with me than I am, but I wonder if she says that to everyone?
There were a lot of questions asked and a lot of examinations made. For me it was a little overkill, in a short time you are confronted with a lot of things that you can not do.
In any case I am not smarter, my questions were answered diplomatically, which I understand. Nobody can look into the future or make decisions for me. Yes, the course can increase in speed or slow down or even stop. So every new day remains a surprise for me.
The question, I want to go without Biohaven because of Modag can understand it, however, she cannot take the decision from me.
She also understands that I want to test for SCA 3. At the same time, she also recommends testing for SCA 17. Although my symptoms already look like MSA to her.
Innsbruck, München, Walchensee, Chiemsee, Ammersee
As I said, I’m no wiser now, but it’s good to talk to doctors for whom I’m not “terra incognita”. Like my health insurance, which has just rejected the permanent prescription, my condition is not on their list, that means my disease is not so bad….
Apart from the doctor’s visit, it was nice to see old friends and familiar areas. Any sentimentality I repress now. Seeing people and places from a time when I still had a life really hits one.