Many greetings from Biskirchen from the Gertrudisklinik! I have been here since Monday and will stay for three weeks in total.So over the holidays, but because I’m not necessarily the … >>>>>>>
Therapy
A man goes when he wants to go
Our paths crossed for a sad reason. And we spent too little time together.
You always had a kind word for all of us. For that I am now a … >>>>>>>
In times like these
This report comes from my brain, adapted from the report of Dr. Lawrence I. Golbe, eminent clinician, head of the science department at CurePSP, USA.
Grade is a non plus … >>>>>>>
The final result
It would take a few days to realize. Out of the dream…
A few days ago came the press release from Biohaven itself that the drug is unfortunately ineffective. I … >>>>>>>
The ease of being (or the difficulty of being?)
What is it like to be stuck in an MSA body? I often wish it on those around me for just 5 minutes. I also don’t know how another MSA … >>>>>>>
MSA does not make me a better person, or rather, how this disease exhausts my mind
I was outside on Sunday – of course with my electric scooter, I can´t walk mainly outside, anymore. I have audio books with me, something to drink, sunglasses and baseball … >>>>>>>
MSA, body care, vanity and things like that…
I’ve been thinking these days, enough is enough, I need to shave my legs. I know that with MSA you have bigger problems than that. But I must say that … >>>>>>>
My way
This is a topic that is rarely talked about, at this point as a warning to all, if you want to read on – it is about one’s own death … >>>>>>>
Like a baby only not so cute
When I move, I remind myself of a baby. I walk, stagger, like a toddler who has just learned to walk. When I move my hand, I am imprecise, I … >>>>>>>
Emergency room
The day before yesterday was the day. First time in the emergency room. Urinary retention. I guess it was a coincidence that I saw urologist about two weeks ago and … >>>>>>>