I have been diagnosed with MSA-C for half a year now and since February I have been consciously doing something about the decay. Of course it’s hard to motivate myself, … >>>>>>>
From another life
I had a visit from a dear friend from my old home last week. Not only did she visit me and bring me some treats from home, she also took … >>>>>>>
Like a dead horse
I woke up like every day. It’s clear to me that I need a little time to reach my “operating temperature”. Then I realized: Coffee is out…
The heat was … >>>>>>>
The magic pill, trials, research
The hope of all of us. That one day – as soon as possible – there will be a medicine that will help us, slow down the disease, even reverse … >>>>>>>
The privilege of being disabled
After my diagnosis, I got ridiculous 40 disabled points, which is almost nothing. That means kind of 300 Euro tax advantage in a year, or something like that. I really … >>>>>>>
MSA and Summer
The last four days I wouldn’t really be well. If you have a neurological disease, the heat isn’t really good for you. You have considerably less reserves, you get tired … >>>>>>>
The Little Asshole in my Head
I had this idea from the beginning. There is a small, ugly and malicious creature sitting in my head, randomly switching off the light, from time to time. And I … >>>>>>>
Calories, Calories, Calories (written in nurse mode)
For people, food represents one of the central areas of activity, which is also closely linked to pleasure, experience, stimulation and, of course, interpersonal communication. However, eating is not only … >>>>>>>
Aids: Curse or blessing?
Recently I read a post which said: “We delayed the wheelchair as long as possible”.
OK, first of all: everybody has to find his own way and I don’t criticize … >>>>>>>
How often does an MSA patient have to change clothes?
I notice that my most important piece of clothing has become the T-shirt. Because I don’t like stains, or because I want to walk around in greasy tops, I have … >>>>>>>