I want to moan about something that excites us all. Whether you like it or not, you compare yourself with others, preferably with similar patients. At least I do. Sometimes … >>>>>>>
Pondering – pros and cons
Changes
Since I have participated in this trial, I observe myself differently. Now I am afraid of any deterioration, because it would (probably) mean placebo.
In general it is very difficult … >>>>>>>
Probable, possible or safe MSA and how do I donate my brain!
Probable, possible or safe MSA and how do I donate my brain?
Yeah, what now? Do I have MSA or not?
Probably most people ask themselves that when they hold … >>>>>>>
Here we go – another stage
Here we go – another stage
Last week on Wednesday I received the mail that Biohaven considers me suitable to participate in the study.
As final start date we had … >>>>>>>
What if…
I guess everyone knows the unrealistic dream “what would I do with 100 billions if I won the lottery”. Everyone’s probably already imagined it. Ten million for charity, ten for … >>>>>>>
Chapter 2 how much Hope is allowed?
By the way, I slept through almost 4 days after visiting the zoo
On the one hand because the weather was so
#hot and oppressive, on the other hand I … >>>>>>>
The Magic
I have the studydrug. Finally. Now, new questions are coming up. Is this the medicine or a placebo? Is everything coming too late? A year ago would have been good. … >>>>>>>
A new chapter
Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went … >>>>>>>
How I move…
…now depends on many factors. How did I sleep, the weather, did I drink enough (and I don’t mean alcohol), how strong are my back pains, were the last days … >>>>>>>
Everyday life
I have no idea whether my condition comes from the removal/change, or from MSA. I am somehow out of rhythm, I have fears for the future, questions, concerns, I am … >>>>>>>