By the way, I slept through almost 4 days after visiting the zoo
On the one hand because the weather was so
#hot and oppressive, on the other hand I had a meeting at GBH on Tuesday after the physiotherapy and that gave me the rest. Sorry for all the people I had to cancel in the next 10 days.
Last monday I finally had my appointment at the DZNE /Bonn. We waited long enough for it! It is about the inclusion in the Biohaven study.
I can still feel this chaos of emotions back in December 2018 when Marta and I spent the night emailing and chatting through gewhats apped to fall asleep on a Sunday morning full of hope.
But what do I expect from this?
Well, first of all I try not to let so much hope arise, because the emotional drop is enormous!
I hope for some stability! That the course will be delayed and that I will have more positive energy!
A lot has happened since that night and when I compare the times I honestly do not know if I was better then or now.
Well, I didn’t need a rollatoaber then, but I fell more often.
Meanwhile I have to concentrate much more when speaking.
If I didn’t suffer from this camptocormia, walking would be half as problematic.
I am slower than a year ago.
Analgetically I am well adjusted compared to a year ago!
Back to the DZNE. First of all, my sister and I got an explanation of the study process and all the bureaucracy. Here a declaration of consent and there a signature.
The next 6 hours I was examined, painted, wrote, did gymnastics, did some calculations and tried to remember my face, velvet, tulip, church and red. 472 to recite backwards and to calculate backwards from 100 in steps of 7. At the laboratory one had to stab 3 times. Psychological tests were the final part before lunch.
Unfortunately there was no lunch because the kitchen was already closed – well, you can’t have everything.
So still to the MRI, where I got earplugs, my hair was tamed with a green scrub cap and afterwards I was pressed into the shape of my head with a tempur cushion. Barbara B. I couldn’t stop thinking about you.
During the MRI I was allowed to watch an animal film on YouTube. Next time I wish for a soccer game. ?
When I got up I was helped in a friendly way. The girls were quite fast, which had the consequence that my pressure was gone.
When everything was back to normal we discussed the medication, what I take since when and in which doses and the further procedure.
On the way back all three of us were so hungry that I already ordered burgers and steaks from the highway ??
The next day came what had to come, in the laboratory there were irregularities and 2 values they could not determine. So on Friday we went to Bonn again for laboratory, blood pressure and temperature control!
Now we have to wait, if I don’t hear anything more we will go to Bonn on the 20th. Then it’s medication – or placebo group and instead of a MRT there will be a lumbar puncture! ?