I remember how much hope we had in the Biohaven study.
Now we are almost 2 months away from the end of the official phase. And the question arises:
What happens next?
What are the possibilities?
There is the “Australian” Alerity with ATH 434, but they are only starting with phase 1.
And there is the Wendelsheim : modag with Anle. 138 b
They want to recruit affected patients at the end of the year. So far, so good.
I’ve already deteriorated since the start of the study, that I think I’m taking a
I think I’m taking a placebo or it’s not working as I’d hoped.
Especially my speech, mobility and balance have gone downhill!
Biohaven is about to go into an off-label study, so if I continue now I probably won’t be able to join modag.
I probably won’t be able to join modag because they don’t know yet how long the break has to be between two trials.
And how will I be after a year if I give up the guaranteed genuine Biohaven?
Will they even include me in the study and if they do, which group will I be in? Medication or placebo?.
And if I get into the drug group and Anle 138b works as described, So stops the disease by dissolving the protein clumps in the cell. How good or bad will my level be then?
So what do I do?