I think a Rammstein concert is certainly not what an MSA patient is recommended to do. It’s a big thing, it’s loud and it’s a huge crowd.
I got the tickets last year before my diagnosis. Back when I bought the tickets, I still felt healthy. After all, I already insisted on seats back then, I felt something was going on with me. Yes, and I think the group is great, and I want to go there, with three other girls.
Now, after 6 months I have many more symptoms, after my diagnosis I told my friends – jokingly – “I’ll go even if you have to carry me”. It’s not that funny anymore. For a short second I considered selling my ticket. I quickly rejected the idea…
Yes, I’m worried if I have the energy to keep it up, the outward trip, the crowd, the queuing, the stairs, if there will be a toilet nearby… Those are things that occupy me. At the last concert, 2 years ago, I thought about what I would wear. Now I think about whether I should bring my walking stick. Without it it would hardly go…
Anyway, I’m going there, I’m not letting MSA take this event away from me. I will see how it will be for me on Saturday.