I want to tell you what I found out after being busy with it and doing some research, why I sometimes feel particularly dizzy. Maybe someone else recognizes themselves here?… >>>>>>>
The curse of a rare disease
By chance I’ve been left without a doctor. My family doctor has unfortunately passed away, my neurologist on maternity leave and my home hospital is closing the “Neurology” department. In … >>>>>>>
Trappen in endless slow motion
Trappen in endless slow motion…
…that’s what I feel like now. Especially this morning when I was spooning my breakfast egg and it took forever for the spoon to work … >>>>>>>
How do you go on living?
This question reached me from a MSA-friend of mine. Good question, I thought so. Actually, I just keep hanging on one day at a time. I never have a clue … >>>>>>>
Pain or no pain
I’ve read that a lot: there’s no pain in MSA. At least, I thought so. I have suffered from pain before, which was very strong and I was relieved to … >>>>>>>
Talk, talk, talk
I don’t know, how many MSA patients receive psychological counseling, I’m one of them. I never thought I’d be reporting publicly about going to a shrink. I used to think, … >>>>>>>
New year new luck or something like that
Happy new year and only the best for 2020, I wish you !
I think on 08.January you can still say that.
Did you all come across well?
And because … >>>>>>>