It is time to pass on this project. We both, Marion & Marta, have started, now there must be heirs…
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Silvia König-Schöpf“I am Silvia, my husband is affected by MSA C. I was born in a small town on the beautiful Rhine. Then I moved to Mainz. Until today I love this city and its people. There I met my husband and went with him to Munich in 1981 (big sacrifice!). In the meantime we have been married for 38 years and have two grown-up children. |
| The first symptoms such as rare balance problems, slurred speech and falls occurred in my husband in 2017, diagnosis at LMU Munich in June 2021. Since then, many things have worsened and new symptoms have been added.
What does the modern person do to inform himself? He looks at what the Internet offers in terms of information. What I found there at first was very scientific and just horrible. Until I came across this blog by Marta and Marion. Respect and a big thank you to both of them for getting something like this up and running, and for bringing patients and meanwhile also relatives together. The exchange (also in the online meeting, Whatsapp, Facebook) is incredibly valuable! There are many helpful tips on aids, dealing with authorities, and very important: you no longer have the feeling of being so completely alone. Everyone knows what you’re talking about. The worst thing for me personally was to explain what kind of disease MSA is and that there is still nothing that can stop it. If I am asked today, I say – have a look at leben-mit-msa.de. This blog simply has to go on. It is a matter of the heart for me to do this in Marta’s and Marion’s sense.“ |
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