Apparently, it’s time to add one or two more of my MSA’s capital.
Monday 14 days ago my sister, my nephew and I, after a guided eternity at home, went … >>>>>>>
A new chapter
Everyday life
I have no idea whether my condition comes from the removal/change, or from MSA. I am somehow out of rhythm, I have fears for the future, questions, concerns, I am … >>>>>>>
After the rain comes always sunshine
I was surprised to find that my last post sounded “darker” than I meant it. Well, that wasn’t my intention. Friends and acquaintances contacted me asking “if everything would be … >>>>>>>
Preparation for rehabilitation, summary of my trip to Canada, new symptoms and about the BIOHAVEN trial
Everyday life at home has me again and I am busy with the usual things like PT, OT, speech therapy, psychologist… First I try to get out of jet lag, … >>>>>>>
Last week
Actually, the week started quietly. Monday we went to the study day at the DZNE in Bonn. And since there are still holidays, the trip was relaxed and free of … >>>>>>>
The most important people in my life – how is it vice versa?
I wonder if I want too much. I want a doctor who knows me well and takes care of me. Who is interested, curious, ambitious, inventive, a doer. When I … >>>>>>>
The magic pill, trials, research
The hope of all of us. That one day – as soon as possible – there will be a medicine that will help us, slow down the disease, even reverse … >>>>>>>