I am in Canada now for a few days! Seeing the Ocean, was on my bucket list, besides I have two cousins with family here and my godchild whom I … >>>>>>>
Let’s go to Canada!
Sleep twice more! I am super excited. I’ve been packing in my head for days now and hope everything goes smoothly.
I have flown before several times in my life … >>>>>>>
How time goes by
I haven’t had a computer for almost a month now. That is the reason for my absence. Typing on my mobile phone is a great exercise, but I couldn’t and … >>>>>>>
Cripples, bastards and broken things
I think everyone who’s seen the fantasy series Game of Thrones will this say something, it’s the title of an episode. It’s about a dwarf, who can only owe his … >>>>>>>
The eternal question “Is this a symptom or not?”
The strange thing about this disease is that it can cause anything. If I have something, I will automatically blame the disease. What you think? Dry scalp or ingrown toenails? … >>>>>>>
What the future has in store for us….
I took this picture about twenty years ago, at least. In Venice, during a holiday in Italy. It is still available for purchase in a picture database. At that time … >>>>>>>
I did it!
I celebrate every time I can still do it myself: Cutting the grass. The problems will start, I think, if I can’t do it myself. That’s the advantage of living … >>>>>>>
How important and valuable eye sight can be – a later insight
Many things we learn to appreciate only after we have lost them. This is very human. MSA patients know, what it feels like, we are constantly losing abilities we used … >>>>>>>
The most important people in my life – how is it vice versa?
I wonder if I want too much. I want a doctor who knows me well and takes care of me. Who is interested, curious, ambitious, inventive, a doer. When I … >>>>>>>
One step forward, two backwards
I have been diagnosed with MSA-C for half a year now and since February I have been consciously doing something about the decay. Of course it’s hard to motivate myself, … >>>>>>>