Here we go – another stage
Last week on Wednesday I received the mail that Biohaven considers me suitable to participate in the study.
As final start date we had … >>>>>>>
The Magic
I have the studydrug. Finally. Now, new questions are coming up. Is this the medicine or a placebo? Is everything coming too late? A year ago would have been good. … >>>>>>>
Everyday life
I have no idea whether my condition comes from the removal/change, or from MSA. I am somehow out of rhythm, I have fears for the future, questions, concerns, I am … >>>>>>>
I call it MSA breathing
And while I’m typing this here and the Effzeh is playing against the glittering city in the city duel, it happens again, nothing dramatic but it can get you into … >>>>>>>
Progress, setbacks
I’ve been in the „living group” in Hessen for a good three weeks now.
Such a move and “inventory through the own life” is without MSA already exhausting and stressful. … >>>>>>>
Corona makes you dull or there is no Glory in prevention
First of all, the niece has recovered except for an annoying cough. Thank you very much for all your recovery wishes!
Like many others I am stuck at home with … >>>>>>>
Preparations
I have been living in isolation for quite some time now, but I must honestly say that this does not affect me that much. I’m going out 10% less than … >>>>>>>
On an island
I’m now four weeks in isolation. What pisses me off about this, is that I live in chaos – waiting to move. Yesterday, I searched through the already packed boxes, … >>>>>>>
To drive or not to drive
Third week in isolation. There I praise my social incontinence, but slowly the roof falls on my head. But that has only partly to do with this virus, it has … >>>>>>>
In quarantine with MSA
We all go through special times. We’re all concerned. The difference is that this situation makes our situation with MSA, even more difficult. For a human being, the probability of … >>>>>>>