I think everyone who’s seen the fantasy series Game of Thrones will this say something, it’s the title of an episode. It’s about a dwarf, who can only owe his … >>>>>>>
The eternal question “Is this a symptom or not?”
The strange thing about this disease is that it can cause anything. If I have something, I will automatically blame the disease. What you think? Dry scalp or ingrown toenails? … >>>>>>>
What the future has in store for us….
I took this picture about twenty years ago, at least. In Venice, during a holiday in Italy. It is still available for purchase in a picture database. At that time … >>>>>>>
I did it!
I celebrate every time I can still do it myself: Cutting the grass. The problems will start, I think, if I can’t do it myself. That’s the advantage of living … >>>>>>>
One step forward, two backwards
I have been diagnosed with MSA-C for half a year now and since February I have been consciously doing something about the decay. Of course it’s hard to motivate myself, … >>>>>>>
From another life
I had a visit from a dear friend from my old home last week. Not only did she visit me and bring me some treats from home, she also took … >>>>>>>
The magic pill, trials, research
The hope of all of us. That one day – as soon as possible – there will be a medicine that will help us, slow down the disease, even reverse … >>>>>>>
The Little Asshole in my Head
I had this idea from the beginning. There is a small, ugly and malicious creature sitting in my head, randomly switching off the light, from time to time. And I … >>>>>>>
We exercise what we have taken for granted up to now
I must honestly say, speech therapy always ended up as last for me. Up to now I have also been able to hide my language problems well, hardly anyone has … >>>>>>>
Aids: Curse or blessing?
Recently I read a post which said: “We delayed the wheelchair as long as possible”.
OK, first of all: everybody has to find his own way and I don’t criticize … >>>>>>>