With diagnosis he moves in with you and will not leave you again so quickly. You will be told: It is ALS, lung cancer, MSA or another pestilence that you … >>>>>>>
On the way to a new life
Like I said earlier, I live alone. Well, living alone has its advantages, but it’s becoming more and more difficult. I am becoming more and more handicapped, some things I … >>>>>>>
The difficulties of pain therapy
Eventful days lie behind me and I almost managed to stay on the ground for 7 days. Unfortunately it did not work out. But in contrast to the last but … >>>>>>>
The villain in the head
Often I was already in the situation to try to explain to my fellow beings – and also to try to understand myself – what kind of illness MSA actually … >>>>>>>
Everything is spinning
I want to tell you what I found out after being busy with it and doing some research, why I sometimes feel particularly dizzy. Maybe someone else recognizes themselves here?… >>>>>>>
The curse of a rare disease
By chance I’ve been left without a doctor. My family doctor has unfortunately passed away, my neurologist on maternity leave and my home hospital is closing the “Neurology” department. In … >>>>>>>
Trappen in endless slow motion
Trappen in endless slow motion…
…that’s what I feel like now. Especially this morning when I was spooning my breakfast egg and it took forever for the spoon to work … >>>>>>>
How do you go on living?
This question reached me from a MSA-friend of mine. Good question, I thought so. Actually, I just keep hanging on one day at a time. I never have a clue … >>>>>>>
Pain or no pain
I’ve read that a lot: there’s no pain in MSA. At least, I thought so. I have suffered from pain before, which was very strong and I was relieved to … >>>>>>>
Talk, talk, talk
I don’t know, how many MSA patients receive psychological counseling, I’m one of them. I never thought I’d be reporting publicly about going to a shrink. I used to think, … >>>>>>>