My life is like a never-ending carousel ride. I can only stop it if I sit down or lie down. I think it often makes me sick from this dizziness, and I think I will get used to it.
Of course it is easiest to lie down, to say rightly, I am sick after all, and not to do anything. That goes well for a few days and then the big surprise comes from behind – you can literally feel the dismantling and decay of the body…
After my diagnosis I was in shock for two or three months and did hardly anything. In February I was outside for the first time – with the walker – which was correspondingly bad. The feeling, the pitiful looks…
Then I bought the Nordic Walking poles and started going out every day. Of course it still doesn’t look perfect, but I’m outside and I’m walking on my own legs!
I imagine that the little asshole named MSA now lives in my head, from time to time a light is switched off arbitrarily, and he also wants me to do nothing, then he has it even easier. And my only possibility is not to treat him.
So I do as much as possible, go out, move, strengthen my muscles, practice balance, because I still believe in healing, and if one day there will be a medicine, I want to be in as good a form as possible.
My advice in general, never skip, PT, OT and speech therapy.
Photo: davidpereiras / photocase.de