Hello, everybody, sitting around at the hairdresser’s right now, so I can write something!
It was in January, Marta and me knew eachother just 2 weeks, we had 1-2 times telephoned, what always ended in a collective cry back then. For both of us it was clear, that we wanted to participate in a trial. The Biohaven trial was far ahead of everyone else, so we wrote to them. And we also got an answer promptly. And as depressed as we two were, before this messaging night, so hopeful were we on Sunday morning. Also because it was said that Munich and Bonn would join in! Each of us made appointments with the respective institute. The chief physician of our intensive care unit was very eager to help me, as was Emrah, a former internist of ours! And my new family doctor, also a former internist, is priceless anyway ?
The appointment in Bonn was not quite as successful as I had hoped, the senior physician told me in a very emphatic way, Bonn would not participate in the study! Hmmm ok!
Thanks to him I got the chocolate problem under control ?
I knew that Innsbruck would take part, so I took the night train and went to Innsbruck! In the train I should have watched the “Murder in the Orientexpress” ?.
Also here everybody was very nice and friendly ,when they advised me not to do the study, in order to invest the money better in water gymnastics. I wasn’t depressed here either. It was ok in a strange way.
Marta and I continued to write to every research group we found.
Biohaven then published the European Research Centres that should participate. And there was Bochum, the glitter city (Düsseldorf) and Bonn! At first I thought they made a mistake. Then I looked again before I went to bed. I looked at the American design of the study. It takes 11 months and you have 7 appointments. That would also be ok for Munich or Innsbruck! And again mails went through the fiber optic cables on the journey. And also here I got very fast answer. Bonn and the glitter city now have all the documents I have.
Now it is examined whether I am suitable, if yes I take part in the study.
What I hope for! In the best case some time! I don’t want to allow myself more, because the emotional fall height is too high for me!
Sometimes the hope is Plan B. ?