Being dissatisfied or unhappy is totally taboo. Negative thoughts and feelings in general. We have to deal with the most devastating disease, our lives, and often the lives of our … >>>>>>>
How are you?
Currently I am dealing a lot with pain. Primarily out of my own need and distress. Almost daily people ask me how I am and I have several problems with … >>>>>>>
About breathing
Lately I have noticed a change – among others – in myself. In the evening, when I lie on the couch, I have unusual breathing. I have to take deep … >>>>>>>
What does MSA mean for (care) relatives?
(Guest article from Silvia)
In 2017, my husband had the first symptoms – slight balance problems and speech was sometimes a little slurred. At that time he was still … >>>>>>>
Do what is possible
For about two weeks now lives the sports group. That’s me, and a handful of participants from our online group. We do one hour of sports every day, each as … >>>>>>>
Dentist visit
I recently had a visit to the dentist. It is never a pleasure and as the disease progresses it becomes more and more difficult.
My dentist had MSA in the … >>>>>>>
Everything slows down
I took a look at how many posts we wrote a month in the beginning, and how many now… It’s getting less. Writing a post is becoming more and more … >>>>>>>
Three weeks of therapy – a summary
So, I’m almost done here. All in all, I can say that the whole thing has not really brought me anything. If, then so much that I speak here more, … >>>>>>>
Therapy
Many greetings from Biskirchen from the Gertrudisklinik! I have been here since Monday and will stay for three weeks in total.So over the holidays, but because I’m not necessarily the … >>>>>>>
A man goes when he wants to go
Our paths crossed for a sad reason. And we spent too little time together.
You always had a kind word for all of us. For that I am now a … >>>>>>>